Advocacy in Action

Today we have, what I hope will be, our final court hearing to overturn the insurance company’s denial of Oliver’s g-tube supplies.  I’ve been embroiled in this battle for months and I am very much hoping that the judge can see what an unnecessary waste of time this entire thing has been for all parties involved.  ... Continue Reading →

Hospital Life

Hospital life is a crazy life.   The pace of the people there is fast but the process is slow.  The stakes are high.  Reactions are quick and things can shift unexpectedly.  Ironically, the hospital is the last place you’d want to go if you actually needed rest.  There are rounds, vital checks, meds, meals, treatment protocols, social workers, dieticians,... Continue Reading →

The Alchemy of Experience

Sometimes I barely recognize the person I’ve become. I took this photo just before walking in to confront our respite agency about why they aren’t staffing our hours with competent caregivers. Five years ago I never could’ve imagined dressing in this conservative outfit and coolly and confidently walking into an office to deal with an... Continue Reading →

Fighting for a Voice

Victory tastes so sweet after a battle hard fought.  And oh have I fought. For the last 3 years I’ve done everything in my power to give my son a voice.  I’ve made hundreds of phone calls, attended seminars and conventions, pleaded doctors and therapists to help me, hired company reps to come to our home, and... Continue Reading →

Blog at WordPress.com.

Up ↑