Baclofen Pump- 5 weeks Post Op

I’ve been meaning to post a Baclofen Pump update for a long time but the weeks just keep flying by!  And to be honest, I’ve also been waiting for a turning point where I could report glowing reviews of this procedure and it’s effects, but that hasn’t come yet, so I figured I’d share our... Continue Reading →

Surgery Day

Driving to the hospital in the dark this morning, it felt as if I were living in a dream.  Words fail to describe the many emotions of a mother embarking upon invasive surgery for her child, while knowing full well that they do not grasp the gravity of what is about to happen.   Each... Continue Reading →

Pre-Surgery Musings

Tonight, as I bathed Oliver for the last time at home before his surgery, I marveled at where our story has taken us.  The irony of this journey is that it has molded me into a warrior.  I have become accustomed to the many battles.  But it has also cracked my heart open wide, exposing... Continue Reading →

Can I Just Opt Out?

Well, we gave the go-ahead to Oliver’s surgical team to schedule his Baclofen Pump placement procedure.   Ever since I sent the email I’ve been consumed with anxiety and second-guesses.  I know he’s having to work so hard  now to fight the dystonia and spasticity.  I hear him gasping for air because he is writhing... Continue Reading →

Breaking Free

About a year after I created  Oliver's Odyssey, I found myself at a backyard barbecue with a women I’d never met. I was telling her about this blog, the story behind it and what it meant to me.  When I finished she laughed and said, “Well, I think it’s kind of funny that you call... Continue Reading →

Halloween Hauntings

Ya know, some years, ya just don’t quite have it all together 😆 Some years you don’t even think about Halloween until your kid’s bus driver gets off the bus dressed as a Crayola Crayon and you think, “Hm… why is she dressed as a …. Faaacckkkk!!!  He was supposed to wear a costume today.” Then, to squash your... Continue Reading →

The Devil of Dystonia

For the first five years of Oliver life, we were able to find work a rounds for many of his physical limitations, essentially sweeping under the rug the level of his disability. When we wanted to hike, we threw him in a baby backpack. When we wanted to travel, we changed him on the baby... Continue Reading →

Homeward Bound

When I arrived in Chicago 35 days ago, I was a frazzled, sleep-deprived, anxiety-ridden mess.  I’d been experiencing life-draining insomnia, unmanageable fatigue, heart palpitations, muscles spasms, chronic pain, 3-day long migraines and my gut had shut down to the point that eating anything caused me terrible pain.  I had gone to as many doctors as... Continue Reading →

The Power of Pause

My first yoga teacher training was 12 years ago, during a time when my life was filled with ease in nearly all ways.  I lived in an off-grid jungle cabin.  I slept well, ate well, had an abundance of time all to myself and few responsibilities to bear.  Teacher training filled my days, and I quickly became immersed... Continue Reading →

Surrender

A while back, during the time just after Nicco’s birth, when my husband was working all day and starting a business all night, when sick family members were living with us and I was struggling to set reasonable boundaries for what I was able to take on, I began to notice a change in my... Continue Reading →

Energy Drinks and Anger

Sometimes in life, you encounter mud. Icky, sticky Mud. To borrow a few lines from one of Oliver’s favorite books, “Can’t go over it. Can’t go under it. Can’t go around it. Got to go through it!” And indeed, we have been going through it. In late May, Oliver caught his first virus since the... Continue Reading →

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