Corona Virus… Maybe Now They Will Understand

To everyone who suddenly feels like the world is one giant infectious monster, to those holding their breath as they pass oncoming humans on the sidewalk, to the people cancelling plane tickets, locking themselves indoors and clutching the Lysol wipes as if they were the only hope, welcome to our daily life… the tribulations of... Continue Reading →

Coming Home

It’s our first day home from the hospital and while I do feel great relief, there is also a weight of sadness plaguing my heart. I know this feeling. I recognize it because I’ve experienced it many times before. It is the resurfacing of grief.  The unique thing about having a child with a brain... Continue Reading →

Armpits and Toothpaste

The early hours of this morning felt like something right out of a twisted psychological thriller.  Oliver’s schedule is pretty off and he was still wide awake at midnight.  I lied down in the parent chair next to his bed, put on the tv and tried to rest, hoping he would fall asleep too.  We both started to... Continue Reading →

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