A while back, I wrote an Instagram post about how a child’s diagnosis can totally waylay a family’s hopes and dreams. It’s easy to lose faith that you’ll ever get back to any version of the life plan you had envisioned. I’ve pondered this very subject for 5 years now. Will my life ever again be filled with things that were once pillars of my dreams? Or is it only insurance battles and disposable diapers for me from here on out?
2020 has been a year of unprecedented occurrence. To varying degrees, the virus has affected us all. It’s led to isolation, loss of livelihood and in many cases, loss of life itself. Families ripped apart, so many have suffered deeply. Fights over equality, politics and government control have left gapping wounds in the unity of our people. There is no... Continue Reading →
Yesterday, the one-year anniversary of Oliver’s Odyssey slipped quietly by. I had planned to do something big, in celebration, but true to the current theme of our life, the month leading up to this special day was filled with chaos and little opportunity for creativity. But this only solidifies in my mind one of the greatest... Continue Reading →
It has been said that the grieving process is like peeling an onion. As each layer falls away, it gives the gift of deeper understanding and also reveals the next level of processing. The stages don’t go smoothly from 1-5… denial, anger, bargaining, depression and then acceptance. They are interwoven and revisit you many times even after... Continue Reading →
I was in rare form this morning. Well, let's be honest, it's not so rare these days. LOL After all of the craziness of the last couple weeks, I completely forgot about our Gastroenterology appointment at UCLA this morning. Luckily I had glanced at my calendar last night and caught my oversight before missing it... Continue Reading →
Hospital life is a crazy life. The pace of the people there is fast but the process is slow. The stakes are high. Reactions are quick and things can shift unexpectedly. Ironically, the hospital is the last place you’d want to go if you actually needed rest. There are rounds, vital checks, meds, meals, treatment protocols, social workers, dieticians,... Continue Reading →