Pre-Surgery Musings

Tonight, as I bathed Oliver for the last time at home before his surgery, I marveled at where our story has taken us.  The irony of this journey is that it has molded me into a warrior.  I have become accustomed to the many battles.  But it has also cracked my heart open wide, exposing... Continue Reading →

Can I Just Opt Out?

Well, we gave the go-ahead to Oliver’s surgical team to schedule his Baclofen Pump placement procedure.   Ever since I sent the email I’ve been consumed with anxiety and second-guesses.  I know he’s having to work so hard  now to fight the dystonia and spasticity.  I hear him gasping for air because he is writhing... Continue Reading →

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