Tonight, as I bathed Oliver for the last time at home before his surgery, I marveled at where our story has taken us. The irony of this journey is that it has molded me into a warrior. I have become accustomed to the many battles. But it has also cracked my heart open wide, exposing... Continue Reading →
Can I Just Opt Out?
Well, we gave the go-ahead to Oliver’s surgical team to schedule his Baclofen Pump placement procedure. Ever since I sent the email I’ve been consumed with anxiety and second-guesses. I know he’s having to work so hard now to fight the dystonia and spasticity. I hear him gasping for air because he is writhing... Continue Reading →