A Journey from Darkness into Light
Sometimes in life, you encounter mud. Icky, sticky Mud. To borrow a few lines from one of Oliver’s favorite books, “Can’t go over it. Can’t go under it. Can’t go around it. Got to go through it!” And indeed, we have been going through it. In late May, Oliver caught his first virus since the... Continue Reading →
******Trigger Warning: Traumatic Birth******* As she pulled my son from my body, the sound of silence was deafening. That iconic wail of a baby’s first cry was absent from our birth story. Instead, she laid a beautiful, blue-tinged little babe upon my chest and began to rub his limp body vigorously. It was in this moment that our... Continue Reading →
Wow!! We won the sleep study lottery today! The hospital called at 3 this afternoon saying they had a last minute cancellation and could get Oliver in tonight if we rushed down to Seattle. So here we are. The 6 hour round trip, a small price to pay, for possible answers that might relieve his... Continue Reading →
https://videopress.com/v/RLNv5T4y?preloadContent=metadata Let’s be honest. In the world of severe disability, there are not too many good choices. At each crossroads there is a decision to make and rarely is it clear which path to choose. Three years ago, sleep deprived to the point of near collapse, we finally gave into the option to give Oliver... Continue Reading →
As many children with Cerebral Palsy do, Oliver also has epilepsy. He doesn't have very many seizures but when he does have one, it doesn't stop on its own. Although we have rescue medication that we carry with us at all times, it has never actually worked. So we are left with only the choice to... Continue Reading →
Until today, it had been a couple of years since I’d had a full blown panic attack. I used to get them a lot when Oliver was little. Back then the stress was just too great and my mind was constantly running wild. But lately I’ve felt strength and calm and relative stability (my husband would laugh at... Continue Reading →
Oliver's Odyssey 