No matter how much thanks you give for a good fortune, it sometimes only lasts so long. It seems that we are now joining the ranks of the more seasoned epilepsy families. Today was yet another seizure day for Oliver. His 6th in the last 2 months. It was mild but long. Just like on Christmas Eve, he seemed to be under a spell, watching an aura, feeling something strange but almost pleasurable. Like maybe that feeling of losing your stomach when you go over a whoop-de-doo on a hilly road. Or maybe it's more like watching the wonder of the world unfold on magic mushrooms. Maybe he's meeting the Buddha. Who knows, man...
Parenting a medically complex child is not as cut and dry as it may seem. Sure, doctors may be very clear on what “proper protocol” might be, but for the people actually living this life, there are many factors to weigh while making decisions. In the medically fragile world, the battles choose you. And today, we chose to fight this one at home.
As many children with Cerebral Palsy do, Oliver also has epilepsy. He doesn't have very many seizures but when he does have one, it doesn't stop on its own. Although we have rescue medication that we carry with us at all times, it has never actually worked. So we are left with only the choice to... Continue Reading →
Until today, it had been a couple of years since I’d had a full blown panic attack. I used to get them a lot when Oliver was little. Back then the stress was just too great and my mind was constantly running wild. But lately I’ve felt strength and calm and relative stability (my husband would laugh at... Continue Reading →