The Anger Stage

Today was hard.  I was inarguably consumed by the anger stage of grief.  Before I write though, I want to preface this post by saying… I do not share our experience for pity or attention.  My writing is a way to help me process through the harder parts of our journey.  Sharing what I write fulfills a different purpose... Continue Reading →

Coming Home

It’s our first day home from the hospital and while I do feel great relief, there is also a weight of sadness plaguing my heart. I know this feeling. I recognize it because I’ve experienced it many times before. It is the resurfacing of grief.  The unique thing about having a child with a brain... Continue Reading →

Armpits and Toothpaste

The early hours of this morning felt like something right out of a twisted psychological thriller.  Oliver’s schedule is pretty off and he was still wide awake at midnight.  I lied down in the parent chair next to his bed, put on the tv and tried to rest, hoping he would fall asleep too.  We both started to... Continue Reading →

Hospital Life

Hospital life is a crazy life.   The pace of the people there is fast but the process is slow.  The stakes are high.  Reactions are quick and things can shift unexpectedly.  Ironically, the hospital is the last place you’d want to go if you actually needed rest.  There are rounds, vital checks, meds, meals, treatment protocols, social workers, dieticians,... Continue Reading →

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