A Journey from Darkness into Light
Last night I conquered one of my greatest fears. Since Oliver’s birth I have been forced FAR outside of my comfort zone countless times. Advocating for him has demanded me to develop qualities I never dreamt would be a part of my life – strong, emboldened, demanding, persistent, driven and relentless. For years the softer, loving parts... Continue Reading →
I wonder, am I alone in my deep longing for a vibrant community of authentic people surrounding me? Or do others want this too? Can we create a social media environment of truth and sisterhood where our imperfections are embraced and healed? I share on social media because I long for this REAL connection; the kind that is forged in the fire of vulnerability and born out of our common struggle to be human. We are reaching out for each other. Let’s connect.
Hot showers have always been one of my most favorite things in the whole world. When I’m tired, sick, stressed, worried, sleepy or wound up… a hot shower is always the cure to my ails. I love the calming caress of the water as it falls over my shoulders, melting away the tension and easing my worried... Continue Reading →
If, five years ago, someone would have told me that I would soon be a person who not only used a calendar, but absolutely depended on one to keep an insanely packed schedule of appointments straight, I would’ve laughed out loud. Calendars were never my style. I was way too carefree and laissez faire for... Continue Reading →
Ahhh Napa … I love the long drive leading to this enchanted destination, where smiling faces and warm greetings meet you at the door. It’s a place where the burdens of life melt away and suddenly the day seems full of lightness, hope and absolute possibility. At Napa, positivity flows freely, quenching the thirst of all... Continue Reading →
There have been a number of times in the last 5 years that I’ve literally thought I might lose my mind. This is one of those times. The news yesterday, of my oldest friend being found dead, alone in his home, hit my like a ton of bricks. The words, 'Ryan passed away', sent waves of shock... Continue Reading →
Before I had Oliver, I was very uncomfortable around people with disabilities. It’s kind of embarrassing to be honest about that, especially at this point in my life, but I wanted to open this conversation up because I don’t think I am the only one who’s felt that way. Often when I am out in the... Continue Reading →
Today was the day. After nearly a year of appointments, phone calls, follow up phone calls, disappointments, more phone calls and a whole lot of waiting, the growth kit for Oliver’s wheelchair was ready to be installed.They’re funny… These simple things. So much emotion from such simple things.It was a hurried morning to get the... Continue Reading →
Last weekend I was lucky enough to spend some high quality bonding time with the best bestie in the whole world, Lynn. Our friendship has lasted over 20 years, surviving geographic separations, differing life paths, and personal change. It has truly stood the test of time and remains one of the deepest friendships I believe I... Continue Reading →
There are 1000 different situations in which a special needs parent will need to summon superhuman strength. Today was one of those times for me. We agreed to do a special session of Cuevas Medek Exercises (CME) today with the woman who trained many of the Napa therapists. I honestly can’t say enough positive things... Continue Reading →
Sometimes I barely recognize the person I’ve become. I took this photo just before walking in to confront our respite agency about why they aren’t staffing our hours with competent caregivers. Five years ago I never could’ve imagined dressing in this conservative outfit and coolly and confidently walking into an office to deal with an... Continue Reading →
As many children with Cerebral Palsy do, Oliver also has epilepsy. He doesn't have very many seizures but when he does have one, it doesn't stop on its own. Although we have rescue medication that we carry with us at all times, it has never actually worked. So we are left with only the choice to... Continue Reading →
Oliver's Odyssey 