Yesterday, Oliver hit me so hard that he gave me a fat lip and a bruise. This certainly isn't the first time his flailing limbs have come into contact with my face but it was so hard this time that it made me cry… partially due to the pain, but mostly because it was one... Continue Reading →
Baclofen Pump- 5 weeks Post Op
I’ve been meaning to post a Baclofen Pump update for a long time but the weeks just keep flying by! And to be honest, I’ve also been waiting for a turning point where I could report glowing reviews of this procedure and it’s effects, but that hasn’t come yet, so I figured I’d share our... Continue Reading →
Driving to the hospital in the dark this morning, it felt as if I were living in a dream. Words fail to describe the many emotions of a mother embarking upon invasive surgery for her child, while knowing full well that they do not grasp the gravity of what is about to happen. Each... Continue Reading →
Can I Just Opt Out?
Well, we gave the go-ahead to Oliver’s surgical team to schedule his Baclofen Pump placement procedure. Ever since I sent the email I’ve been consumed with anxiety and second-guesses. I know he’s having to work so hard now to fight the dystonia and spasticity. I hear him gasping for air because he is writhing... Continue Reading →