Life Flight

As much as I hone my writing skills, I don’t believe I will ever be able to fully capture in words, the beautiful tragedy of the medically complex life.  Most outsiders would see only the suffering and the limitations. But what is missing from that perspective, is the striking beauty and unique opportunities that stand... Continue Reading →

Rebuilding the Team

Wow! What a roller-coaster of a 24 hrs.! Yesterday, the school year got off to a rousing start with mommy completely failing the first day of kindergarten E-learning.  Due to extreme sleep deprivation causing a total inability to concentrate on much of anything these days, I somehow misunderstood that there was, in fact, much more to... Continue Reading →

Celebrating 5 Years of Life

My tiny little angel with a great big heart and deep knowing eyes ... today we celebrate the 5th anniversary of our Birthing Day. The moment that you dipped your toes into this world, and then pulled them back, not quite sure if you wanted to stay.  I’m so glad you did. ❤ I know that the... Continue Reading →

Peeling the Onion

It has been said that the grieving process is like peeling an onion.  As each layer falls away, it gives the gift of deeper understanding and also reveals the next level of processing. The stages don’t go smoothly from 1-5… denial, anger, bargaining, depression and then acceptance.  They are interwoven and revisit you many times even after... Continue Reading →

Stolen Glances

Before I had Oliver, I was very uncomfortable around people with disabilities.  It’s kind of embarrassing to be honest about that, especially at this point in my life, but I wanted to open this conversation up because I don’t think I am the only one who’s felt that way.   Often when I am out in the... Continue Reading →

Growing Pains

Today was the day. After nearly a year of appointments, phone calls, follow up phone calls, disappointments, more phone calls and a whole lot of waiting, the growth kit for Oliver’s wheelchair was ready to be installed.They’re funny… These simple things. So much emotion from such simple things.It was a hurried morning to get the... Continue Reading →

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