Stolen Glances

Before I had Oliver, I was very uncomfortable around people with disabilities.  It’s kind of embarrassing to be honest about that, especially at this point in my life, but I wanted to open this conversation up because I don’t think I am the only one who’s felt that way.   Often when I am out in the... Continue Reading →

Growing Pains

Today was the day. After nearly a year of appointments, phone calls, follow up phone calls, disappointments, more phone calls and a whole lot of waiting, the growth kit for Oliver’s wheelchair was ready to be installed.They’re funny… These simple things. So much emotion from such simple things.It was a hurried morning to get the... Continue Reading →

When Therapy and Terror Become One

There are 1000 different situations in which a special needs parent will need to summon superhuman strength. Today was one of those times for me.  We agreed to do a special session of Cuevas Medek Exercises (CME) today with the woman who trained many of the Napa therapists. I honestly can’t say enough positive things... Continue Reading →

The Tiger that Lurks in the Shadows

As many children with Cerebral Palsy do, Oliver also has epilepsy. He doesn't have very many seizures but when he does have one, it doesn't stop on its own. Although we have rescue medication that we carry with us at all times, it has never actually worked.  So we are left with only the choice to... Continue Reading →

Fighting for a Voice

Victory tastes so sweet after a battle hard fought.  And oh have I fought. For the last 3 years I’ve done everything in my power to give my son a voice.  I’ve made hundreds of phone calls, attended seminars and conventions, pleaded doctors and therapists to help me, hired company reps to come to our home, and... Continue Reading →

And the Waves Crash Down

Until today, it had been a couple of years since I’d had a full blown panic attack.  I used to get them a lot when Oliver was little.  Back then the stress was just too great and my mind was constantly running wild.  But lately I’ve felt strength and calm and relative stability (my husband would laugh at... Continue Reading →

Shifting Perspectives

As someone who puts her foot in her mouth fairly regularly, I totally understand unintentionally saying something hurtful to someone.   In our world of uber political correctness and extreme sensitivity, it sometimes seems that the safest thing to do is just not speak at all.  I honestly believe most people are good and well intentioned in... Continue Reading →

The Gift of Accessibility

Sometimes it’s hard for me to feel much pride in the America in which we live.  Don’t get me wrong; I love every natural part of this land. The forests are magical, the canyons are vast, the mountains crisp and high, the plains open and free. But the political and corporate monsters that rule from behind the smoke... Continue Reading →

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