Yesterday, Oliver hit me so hard that he gave me a fat lip and a bruise. This certainly isn't the first time his flailing limbs have come into contact with my face but it was so hard this time that it made me cry… partially due to the pain, but mostly because it was one... Continue Reading →
Baclofen Pump- 5 weeks Post Op
I’ve been meaning to post a Baclofen Pump update for a long time but the weeks just keep flying by! And to be honest, I’ve also been waiting for a turning point where I could report glowing reviews of this procedure and it’s effects, but that hasn’t come yet, so I figured I’d share our... Continue Reading →
Can I Just Opt Out?
Well, we gave the go-ahead to Oliver’s surgical team to schedule his Baclofen Pump placement procedure. Ever since I sent the email I’ve been consumed with anxiety and second-guesses. I know he’s having to work so hard now to fight the dystonia and spasticity. I hear him gasping for air because he is writhing... Continue Reading →
The Devil of Dystonia
For the first five years of Oliver life, we were able to find work a rounds for many of his physical limitations, essentially sweeping under the rug the level of his disability. When we wanted to hike, we threw him in a baby backpack. When we wanted to travel, we changed him on the baby... Continue Reading →