A Journey from Darkness into Light
I’ve been meaning to post a Baclofen Pump update for a long time but the weeks just keep flying by! And to be honest, I’ve also been waiting for a turning point where I could report glowing reviews of this procedure and it’s effects, but that hasn’t come yet, so I figured I’d share our... Continue Reading →
Well, we gave the go-ahead to Oliver’s surgical team to schedule his Baclofen Pump placement procedure. Ever since I sent the email I’ve been consumed with anxiety and second-guesses. I know he’s having to work so hard now to fight the dystonia and spasticity. I hear him gasping for air because he is writhing... Continue Reading →
For the first five years of Oliver life, we were able to find work a rounds for many of his physical limitations, essentially sweeping under the rug the level of his disability. When we wanted to hike, we threw him in a baby backpack. When we wanted to travel, we changed him on the baby... Continue Reading →
Oliver's Odyssey 