A Journey from Darkness into Light
I’ve been meaning to post a Baclofen Pump update for a long time but the weeks just keep flying by! And to be honest, I’ve also been waiting for a turning point where I could report glowing reviews of this procedure and it’s effects, but that hasn’t come yet, so I figured I’d share our... Continue Reading →
Driving to the hospital in the dark this morning, it felt as if I were living in a dream. Words fail to describe the many emotions of a mother embarking upon invasive surgery for her child, while knowing full well that they do not grasp the gravity of what is about to happen. Each... Continue Reading →
Sometimes in life, you encounter mud. Icky, sticky Mud. To borrow a few lines from one of Oliver’s favorite books, “Can’t go over it. Can’t go under it. Can’t go around it. Got to go through it!” And indeed, we have been going through it. In late May, Oliver caught his first virus since the... Continue Reading →
Oh goodness, that is a loaded question! I have more than a few suggestions about how to improve the care from our medical community, but I will try to pare them down to the most crucial points; those that could help support our families in more constructive ways. Name the diagnosis! There is a saying in... Continue Reading →
Oliver's Odyssey 